Education Faces of MLD

The Premier Family Resource for Metachromatic Leukodystrophy Information & Support

Pinterest Follow

Donate Now
Supporting Compassion for families, Awareness, Research, and Education.


Care of Your MLD Loved One

this topic is under development - most of these links will take you off-site and some may cease to exist as others change their web sites. Please suggest new links you would like to see here.

SSI - Supplemental Security Income (for US residents)

SSI is a program of the Social Security Administration (SSA) that makes payments to disabled persons (including children) who have limited income and resources. Many states pay a supplemental benefit to persons in addition to their Federal benefits. (SSDI is a separate program based on funds you have contributed to Social Security over the years).

Late infantile MLD is part of the SSI Compassionate Allowances (CAL) initiative. This initiative is a way to expedite the processing of SSDI and SSI disability claims for applicants whose medical conditions are so severe that their conditions obviously meet Social Security's definition of disability. It is not a separate program from SSA's two disability programs, SSDI and SSI.

More information on SSI here and on the CAL here. Be sure to read the FAQ here, too.

A 3rd party summary of the CAL for MLD is here.

Care of your MLD family member

G & J Tubes

Reflux & Fundoplication

Drugs and Metachromatic Leukodystrophy

Physical Therapy, Scoliosis, etc.

  • additional topics and organization underway


Home | About Us | Contact Us | Disclaimer | Privacy & Data Policy | Legal-Trademarks | (c) 2000-2024 MLD Foundation